For the last year, with Groupaya’s favorite collaboration ninja Rebecca Petzel, I have had the pleasure of working on a ground-breaking project for medical research. With the stellar Health eHeart Study team at UCSF and a dozen patient and patient organization representatives, we have been slowly building a new kind of network — an alliance between patients, caregivers, and researchers to produce patient-powered and patient-centered research. This network is part of a budding movement, supported largely by The Patient-Centered Outcomes Research Institute […]